
Patient Support Organisations
National Organization for Rare Disorders
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Metabolic Support UK
The leading patient organisation for inherited metabolic disorders
National Tay-Sachs & Allied Diseases Association (NTSAD)
leading the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community.
The CATS Foundation
The CATS Foundation provides support, raises awareness and leads the research for Tay-Sachs and Sandhoff disease.