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Patient Support Organisations
Visit: https://rarediseases.org/

National Organization for Rare Disorders

NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Visit: https://www.metabolicsupportuk.org/

Metabolic Support UK

The leading patient organisation for inherited metabolic disorders

National Tay-Sachs & Allied Diseases Association (NTSAD)

leading the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community.

The CATS Foundation

The CATS Foundation provides support, raises awareness and leads the research for Tay-Sachs and Sandhoff disease.

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